Over 300 million people worldwide live with a rare disease. Many go undiagnosed for years. When trials exist, patients often never hear about them. Recruitment is slow, inefficient and disconnected from real human lives.
At Iasis Health, we believe that successful rare disease trials begin with trust - not just data.
In a landscape where over 50% of sites fail to enroll a single patient, and timelines spiral due to recruitment hurdles, we offer something different: deep, human relationships with rare disease communities built over time - not transactions.
Rare disease drug development is surging - but patient recruitment remains the bottleneck. These trials demand more than algorithms and databases. They require cultural sensitivity, family engagement, and relentless logistical support.
Many patients are children. Many families are exhausted. And many communities - rightfully – carry scepticism about clinical research.
>50-70% of trial sites fail to recruit a single patient
Small, geographically dispersed patient populations
High caregiver burden, paediatric challenges
Mistrust and lack of awareness around trials
Unrealistic expectations around patient availability
We specialize in high-burden, moderate-prevalence rare diseases. These are serious, progressive conditions - and their communities deserve more than transactional outreach.
Here's how we do it:
We work closely with sponsors developing therapies for high-burden, moderate-prevalence rare diseases. Whether the phase of the trial or post-marketing follow-up, we ensure timely, ethical, and family-supported recruitment that respects the lived experience of rare disease communities.
The Outcome: Faster Recruitment, Higher Retention, and Real-World Trust
Let's replace enrollment anxiety with confidence. Together, we can accelerate the delivery of life-changing therapies - ethically and efficiently.